Ciara Micks-Wallace was diagnosed with Ehlers Danlos Syndrome (EDS) in 2015 at the tender age of 13. That means that she suffers chronic pain, partial dislocation of her joints, chronic fatige, heart irregularities, gastro complications, headaches and blackouts.
Ciara’s condition has got worse over a short period of time and there is a risk of paralysis if she doesn’t have a major operation. Whilst the operation will not cure Ciara, it will improve the quality of her life and reduce the risk of paralysis and other serious complications.
Ciara, who just turned 16 in December, will have to go to Barcelona in March to have the operation with the specialist Dr. Gilete. The cost of this intervention is a whooping €100,000. So far she has managed to raise nearly €68,000 with fundraisers organised by her relatives and friends in Ireland, Scotland and Lanzarote. Despite of this amount being quite significant, there are still another €32,000 to go!
Ciara now lives in Limerick, Ireland, having previously lived in Scotland. She used to come to Lanzarote with her family to visit relatives who have been in the island for over 20 years. It was 5 years ago when Ciara was last in Lanzarote where she enjoyed spending quality time with resident and visiting relatives as well as spending time at the beach or by the pool, just doing normal kids stuff. That was, obviously, before she was diagnosed.
To help her raise the funds she needs for her operation, there will be a special event at the The Good Old Days Bar & Kitchen on the Avenida de las Playas in Puerto del Carmen next Friday, 9th of February at 8pm.
There will be games and live music with Chris Green, Scully, Denis O’Sullivan, Declan, Mick Bennett and of course, The Good Old Days’ hosts Charlie and Nolita.
Also there will be a raffle. Tickets are €5 for a strip of 5 for the chance to win some very interesting prizes:
1st Prize 1 week Accom for 2 people in Las Vistas
2nd Prize Submarine Excursion for 2 people
3rd Prize Meal for 2 in a local Restaurant
4th Prize Voucher for A Little Bit Bazar
5th Prize 2 Tickets for 6D Cine/Mini Golf
6th Prize Bottle of Pink Gin
We hope that Ciara raises the funds required and that the operation is a success, so her quality of life can be improved.
For those who would like to make a donation but might not able to attend this event, there is a fund raising page, https://www.gofundme.com/CiaraEDS.
There is also a Facebook page Ciara’s flight for Life – Life with Ehlers Danlos Syndrome where you can also find out more about her condition and progress.